In a poignant tribute to her late daughter, a grieving mother has raised £200,000 for research into T-cell lymphoma and leukaemia. Tragically, her daughter, Ruby Fuller, passed away at the tender age of 18, just three weeks after receiving the heart-wrenching news that her cancer was incurable.
Ruby, a bright and compassionate young woman, left an indelible mark on those who knew her. Her mother, Emma Jones, is dedicated to keeping her memory alive by supporting vital research efforts in the field of blood cancer. Emma, an environmental consultant from London, has launched the “Live Kindly, Live Loudly” project, which seeks to raise £500,000 for research into T-cell lymphoma and leukaemia, the diseases that claimed Ruby’s life.
Ruby’s journey with cancer began during her A-level studies when she started experiencing symptoms like fatigue and facial swelling. Her diagnosis of T-cell acute lymphoblastic lymphoma led to intensive medical treatment, transforming her life as a dedicated student into one as a patient requiring frequent hospitalization.
Ruby’s family experienced significant financial strain during her treatment, with both parents being self-employed. The mounting medical expenses and reduced work hours took a toll on their finances, but they remained devoted to supporting their daughter.
T-cell blood cancer is a rare and aggressive form of the disease. Ruby underwent chemotherapy followed by a stem cell transplant from a donor found through the Anthony Nolan charity. She enjoyed a brief respite from the hospital, spending precious time with her family.
However, the cancer returned in the form of leukaemia during a routine check-up. Ruby’s family received the devastating news that there was nothing more that could be done to save her. She passed away soon after, leaving her family heartbroken.
During the pandemic, Ruby’s story gained media attention when her mother expressed anger over strict adherence to lockdown rules, given the revelations about gatherings at Downing Street. Ruby had been unable to say proper goodbyes to her friends and family, limited to virtual farewells due to social distancing measures.
Inspired by Ruby’s spirit and kindness, her family established the ‘Live Kindly, Live Loudly’ Fund to fund research into T-cell blood cancer. Emma Jones and her family have successfully raised over £213,000 for the cause. This fundraising effort not only honors Ruby’s memory but also empowers her family and friends to channel their grief into a positive impact.
Ruby’s younger sister, Tabitha, had the opportunity to engage in work experience with the research team supported by Ruby’s fund, further emphasizing the family’s commitment to advancing cancer research.
Emma remains determined to reach their goal of £500,000, which they estimate is equivalent to the NHS’s expenditure on Ruby’s treatment. She firmly believes that through continued research, effective treatments can be developed to ensure the survival of all young people with cancer in the future.
Ruby’s legacy lives on through her family’s unwavering dedication to improving the prospects of young people battling T-cell blood cancer. The ‘Live Kindly, Live Loudly’ Fund serves as a testament to her spirit and the enduring love of her family and friends.